Welcome to haemophilia.ie
The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.
Alynlam’s hemophilia clinical program testing fitusiran in patients with either hemophilia A or B has been put on hold following the death of a patient in 1 of the company’s trials. In a news conference, Akshay Vaishnaw, M.D., Ph.D., vice Read more >
In late August, the Irish Blood Transfusion Service (IBTS) announced that a recipient of a blood transfusion had been infected with hepatitis B by that blood transfusion. Hepatitis B is a common form of infectious hepatitis, causing millions of Read more >
The Society offers support to persons with haemophilia, von Willebrand’s disease, related bleeding disorders and to their families on any issue which relates to their haemophilia or their ability to deal with their medical condition. This support includes regular hospital Read more >