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Welcome to haemophilia.ie

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.

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Atlas

Alynlam’s Hemophilia Program On Hold Following Patient Death

Alynlam’s hemophilia clinical program testing fitusiran in patients with either hemophilia A or B has been put on hold following the death of a patient in 1 of the company’s trials. In a news conference, Akshay Vaishnaw, M.D., Ph.D., vice Read more >

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Transmission of Hepatitis B by Blood Transfusion

  In late August, the Irish Blood Transfusion Service (IBTS) announced that a recipient of a blood transfusion had been infected with hepatitis B by that blood transfusion. Hepatitis B is a common form of infectious hepatitis, causing millions of Read more >

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Members Conference 2017 – Book Online

We are pleased to announce details of our Members’ Conference, which takes place in the Hodson Bay Hotel in Athlone, Co. Westmeath, over the weekend of 20th to 22nd October, 2017. Adults’ Programme The adults’ programme, we hope, gives a Read more >

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Inhibitor Update

People with haemophilia receive recombinant factor concentrates to help their blood to clot. However, in some people, the immune system may produce antibodies which block the effects of the treatment. These antibodies are known as ‘inhibitors’.   Each year we Read more >

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Hospital & Home Visits

The Society offers support to persons with haemophilia, von Willebrand’s disease, related bleeding disorders and to their families on any issue which relates to their haemophilia or their ability to deal with their medical condition. This support includes regular hospital Read more >

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