New NCHCD
_MG_3008-Edit
_MG_2913
05-Fun in Kids group
IMG_2939
_MG_3768
_MG_3143
_MG_2336
Bucket Collection 1
TGBD2
Welcome to our new look website. We hope you enjoy the read. If you have any feedback, please contact Debbie or Aoife on 01 6579900.
If you would like to sign up for our monthly electronic magazine, please contact Aoife on 01 6579900.
Fancy doing some fundraising for the Society? For more information contact Nina on 01 6579900.
I.H.S. Hoodies! There is no better way to stay warm. If you would like to buy a hoodie, contact Paula on 01 6579900.

Welcome to haemophilia.ie

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.

Newsfeed

IHS_AGM_2017-00368

AGM & Conference 2017 – Photos

Many thanks to everyone who attended our AGM & Conference 2017. We have uploaded photos from the weekend of our children’s groups, adult sessions and Gala dinner. Click here to view photos.  

Factor-IX

Information Meetings – New Haemophilia B Treatment

  Following a recent tender/procurement process undertaken by the Haemophilia Product Selection Board (which includes both haemophilia doctors and the Society), the recombinant factor IX coagulation factor concentrate used for the treatment of factor IX deficiency will be changed from Read more >

programme and info

Hepatitis C Open Conference

  Date: Saturday 13th May 2017 Venue: Castleknock Hotel, Castleknock, Dublin 15. This one‐day conference, (organised by the Irish Haemophilia Society) will be an opportunity for people with Hepatitis C, to receive updates on treatment, how to access treatment and Read more >

IHS_AGM_2017-00033

Presentations from the I.H.S. AGM and Conference, 2017

Here are some of the presentations from our AGM and Conference that took place over the weekend of the 3rd – 5th March, 2017. HISTORY OF THE IRISH HAEMOPHILIA SOCIETY AN UPDATE ON HAEMOPHILIA CARE VIETNAM: WHAT IS THE G.A.P Read more >

diagnosis

Clinical Trials

Gene Therapy The National Coagulation Centre (NCC) will be holding special clinics this month to offer blood tests to people with severe factor IX deficiency to assess their suitability for possible inclusion in a Gene Therapy clinical trial. Special clinics Read more >

Top