Living with Haemophilia

Haemophilia is an inherited bleeding disorder, where one of the blood clotting proteins are absent or present in an reduced amount. A diagnosis of haemophilia in you or your child can be a traumatic experience as your knowledge of haemophilia may be very limited or rooted in a past reality, where adequate and safe treatment was not available. The good news is that such fears are unfounded. Current state of the art treatment for haemophilia is available in Ireland. The life expectancy of a child born with haemophilia now in Ireland is essentially normal and their quality of life will be excellent. Haemophilia is a lifelong condition and it is important that you and your child learn about the condition in order to live in a positive manner with the condition. Information and education are vital. Be assured that the Irish Haemophilia Society will be there to help you in every step of your journey.

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