Education & Information

The Irish Haemophilia Society offers education and information to all members living with haemophilia, von Willebrand’s disease and other related bleeding disorders. From the time of diagnosis, there are many issues facing people with haemophilia and for their parents, families and friends. From how to recognise a bleed, to treatment, to support services. Coming to terms with a diagnosis can be very difficult especially when there is no history of haemophilia in the family.

Through our educational programmes at our annual conferences, family weekends, information meetings and other events, we educate our members and give as much information as possible.

We also provide booklets and up-to-date information on this website. We constantly endeavour to help members with any queries or questions they may have.

We provide education and information to the following categories of people:

• People with haemophilia who have been affected by HIV and/or Hepatitis C.

• The families of those who have died of either or both viruses.

• Adults with haemophilia.

• Older adults with haemophilia.

• Children with haemophilia and their families.

• Families with a new diagnosis of haemophilia.

• Carriers of haemophilia.

• Persons with von Willebrand’s disease.

• Women with bleeding disorders.

• Individuals with rare bleeding disorders such as Factor VII, Factor X and Factor XIII deficiency.

• Non-nationals with haemophilia and their families who have moved to Ireland from abroad.

• Individuals with mild haemophilia.

• Individuals currently undergoing treatment for Hepatitis C.

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