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Monday, 6 February, 2012
INFORMATION
THE ORGANISATION
REFERENCE


Irish Haemophilia Society Discussion Forum

   
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INFORMATION

Bleeding Disorders

About Haemophilia

Severity

Inheritance

Diagnosis

Treatment

Home Treatment

On Demand and Prophylactic Therapy

Inhibitors

von Willebrands Disease

Types

Diagnosis

Inheritance Pattern

Treatment

Life with von Willebrands Disease

Rare Bleeding Disorders

Factor I (Fibrinogen) Deficiency

Factor II (Prothrombin) Deficiency

Factor V Deficiency

Combined Factor V & Factor VIII Deficiency

Factor VII Deficiency

Factor X Deficiency

Combined Deficiency of Vitamin K - Dependent Clotting Factors

Factor XI Deficiency

Factor XIII Deficiency

Irish Demographics

Women with bleeding disorders

Haemophilia and Symptomatic Carriers

Gynaecological Problems

Other gynaecological conditions

Pregnancy in Women with Bleeding Disorders

Article: My life with von Willebrands Disease

Women and Bleeding Disorders Information Days

Carriers

Haemophilia and Symptomatic Carriers

Getting Past the Guilt: Psychological Issues for Carriers of Haemophilia

Dental Care

Dental Care for Children with Hereditary Bleeding Disorders

Introduction to Haemophilia

HIV / Hepatitis C

Haemophilia and HIV in Ireland

Living with HIV

Articles and Information

Report from WFH Congress 2010

Treatment for HIV

Articles and Information

About Hepatitis C

Report from WFH Congress 2010

Hepatitis C Database Report Issued

Living with Hepatitis C

Articles and Information

Treatment for Hepatitis C

New Treatments - Update Meeting

New Treatments

Protease Inhibitors /IL28B - What's, Why's and When's

Treatment for Hepatitis C Mono Infected

Treatment for Hepatitis C Where There is HIV Co-Infection

Hepatitis C Monitoring Guidelines

Articles and Information

Information Booklet on Hepatits C

Counselling & Outreach

HAA Card

HAA Assessment

A Guide to the Health Amendment Act Card - What does if entitle me to?

Information for Hospitals on the Health Amendment Act Card

Clinic Scheduling for HAA Cardholders

HSE Liaison Officers

Life/Mortgage Insurance Scheme

Frequently Asked Questions

Travel Insurance

Legislation

Factor Safety Issues

IHS Safety Updates

Summer 2010

Spring 2010

Summer 2009

Spring 2009

December 2008

March 2008

December 2007

August 2007

vCJD

vCJD in the UK

Haemophilia and exposure to vCJD

WFH Statement re vcjd risk

World Federation of Hemophilia Safety Updates

WFH Global Forum

Blood/Plasma Issues - Articles & Information

Interesting Articles

Treatment Centres

Treatment Centres in Ireland

Bleeding Disorder ID Card

Information for Patients attending NCHCD,St. James Hospital

Treatment Centres Worldwide

Treatment Centres Audits

2008

2006

Audit of Secondary Centres 2011

Educational Material

NCHCD - Access to the Centre

NCHCD - Patient Representative Panel

NCHCD - Haemophilia Review Form

NCHCD - Articles & Information

Our Lady's Childrens Hospital Crumlin - Cafeteria Information

Cork University Hospital - Centre Details

For Adults

Sports and exercise

Joint Health The Benefits of Swimming

Haemophilia through the generations

Ageing & Haemophilia

Information

Getting Older? Prepare or Fall!

AGM 2011 - Report on Session 'Ageing and Haemophilia'

Relevant Articles

Orphan Drug Designatio for Gene Therapy Program for Treatment of Haemophilia B

ASH: Gene Therapy Puts Merry in 'Christmas' Bleeding Disease

Getting Older? Prepare or Fall!

How to Improve Veins

The Key to your Health is your Waistline

2010 AGM

Look After your Mental Health in Tough Economic Times

Psychosocial Training in Belarus

Queen Victoria carried severe Haemophilia, Christmas Disease, gene

Members Weekend 2009

Pain Management

Benefits & Allowances

A Sibling's Story

Presentations

Presentations from the 2011 Members Conference

Joint Replacement

Podcast on Join Replacement

For Parents

Introduction

Articles and Information

The Early Years

Treatment

Education

Barretstown 2012

About Barretstown

The Benefits of Barretstown

Some Points to Remember

Relevant Articles

Information Booklets, Presentations and Articles

Podcast

Our Experience of von Willebrands Disease

A Survey on Prophylaxis versus On Demand Therapy in Young Adults

A Mother's Story

A Sibling's Story

What if something happens and I am not there

Raising Three Boys with Haemophilia A

Psychosocial Care

Growing up with Haemophilia in the 1960s

Parents Conference

Presentations from Parents Conferences

Parents Conference 2011 - Report

Parents Weekend 2011

Parents Weekend 2009

I.H.S. publications

For Young Adults

College

Sports

Scholarships & Grants

Tips for Applying

Successful Recipients

Educational Grant

Educational Scholarship

Reasons to apply, from previous winners

Future Events

Relevant Articles

Reaching New Heights

A Survey on Prophylaxis versus On Demand Therapy

Tripping around New Zealand

October Weekend 2009

Not all who wander are lost

First Year University, A Haemophilia Perspective

Question and Answers with Maureen Downey Grant Winner

How to Improve Veins

Podcasts

For Children

Sports

Education

Riddles

Relevant articles and publications

My Sizzlin' Summer Holidays

Publications

October Weekend 2009

AGM 2011

Top 5

Top 5 Reasons to take your prophylaxis

Top 5 Reasons to Move from a Port to Veins!

Top 5 reasons to Self Infuse!

IHS Movie

THE ORGANISATION

About The IHS

The Irish Haemophilia Society

Representation

Who We Are

The Board

The Staff

Strategic Plan

Services & Support

Education

Publications

Counselling

Support to Members

Advocacy

Conferences & Meetings

AGM & Conference

October Members Conference

Parents Conference

Publications

Hospital Liaison

Entitlements & Benefits

I.H.S. Publications on Benefits & Allowances

Discussion Forum

Back to School

Calendar of Events

February 2012 - Strictly Come Dancing Fundraiser

March 2012 - AGM

May 2012 - Parents Conference

September 2012 - HIS IHS

October 2012 - Members Conference

Register for Events

Reports from Events

My Members' Conference

HIS I.H.S. 2011

Official Opening of Cork Haemophilia Treatment Centre

Parents Conference 2011

Women and Bleeding Disorders Information Days

Celebrations in Cork

AGM 2011 - A Member's Memory

AGM - Behind the Scene with the staff

AGM 2011 - Youth Group

AGM 2011 - Kidlink

AGM 2011 Presentations

Parents Weekend 2010

Relatives Day 2009

October Weekend 2009

AGM 2009

October Members Weekend 2008

Calendar of Events

Other Events

Other Events Calendar

Conference Reports

UK AGM 2011

EHC Conference 2011

Hungarian Summer Camp

WFH World Congress 2010

EHC Conference 2009

WFH Global Forum

EHC Conference 2008

Presentations from the 2008 EHC Conference

WFH World Congress 2008

Get Involved

About Membership

Register for Membership

Attending Meetings

Volunteering

Volunteer Programme Application Form

A Volunteer's Point of View

Our Volunteers

Fundraising

Sponsorship Form

Cork Mini Marathon

Mini Marathon

Planned Giving

Fundraising 2010

Fundraising 2009

Castledermot 'Threshing and Vintage Working Day' Fundraiser

Dublin Marathon

Four Peaks Challenge

Fundraising 2008

IHS Text Service

IHS Text Service

Make a donation

Leave a legacy

Legacy Brochure

Sponsorship Form

Galleries

2011 Photos

2010 Photos

2009 Photos

2008 Photos

2007 Photos

2006 Photos

2005 Photos

REFERENCE

Publications

IHS Magazines

IHS Publications

IHS Articles in Journals

IHS Podcasts

IHS Annual Reports

Lindsay Tribunal

WFH Publications

Consultative Council on Hepatitis C

Economics

Organisation of Care

Statutory Bodies

National Haemophilia Council

Members of the National Haemophilia Council

National Treatment Guidelines

NHC Strategic Plan

NHC Service Plans

Treatment Centre Audits

Haemophilia Product Selection & Monitoring Advisory Board (HPSMAB)

Product Selection Criteria

Consultative Council on Hepatitis C

Services of the Consultative Council on Hepatitis C

Members of the Consultative Council on Hepatitis C

Statutory Instrument of the Consultative Council

IHS Abstracts & Posters

International Conference June 2009

A Global Perspective

Irish Haemophilia Society Product Donations

Twinning

World Federation of Hemophilia

Programmes of the WFH

WFH World Congress 2012

WFH World Congress 2010

WFH World Congress 2008

WFH Executive Committee 2010 - 2012

European Haemophilia Consortium

EHC Steering Group

EHC Conference 2010

EHC Conference Lithuania 2009

EHC Conference Dublin 2008

European Statistics

Global Articles and Presentations

Media Information

Haemophilia Basic Information

History of the Irish Haemophilia Society

Advocacy

HIV/Hepatitis C Information

Press Releases

Press Release Re: Women and Bleeding Disorders Symposium 2011

Press Release Re: Haemophilia and Exposure to vCJD 2009

Links

Links

Last Updated: Friday, 3 February, 2012